Tips On Vitiligo From People With Vitiligo Raw advice on how to deal with vitiligo from people in the trenches of life. www.ihavevitiligo.com
Each tip is from a real person, that really has vitiligo. There are some common points among the tips, but each one is different. Vitiligo is just like clothes. Wearing them does not define your true self. They could only emphasize your personality. So just wear your vitiligo and choose to be brave everyday. And that strength and confidence within you will be emphasized by your spots. Let your inner self be seen. Coz that defines who you really are. Aiza I think of vitiligo as body art. It s beautiful and unique and that makes people with vitiligo special and different and different is better than being just like everyone else and if people can see vitiligo as something beautiful and not something that s wrong then they could start seeing them selfs as beautiful too. Emily Have Faith everyone, I began getting Vitiligo when my baby son was born and have had it now for 39 years. I am completely white now and was so happy just to be one color. I was very upset when I began to see these spots, but things could have been worse. At least I didn t need medical treatment, or hurt, or did it damage me in any way except for my looks, but hey I could live with that. I accepted it and moved on. Yes I looked like an idiot wearing long sleeved shirts in the summer heat and makeup covered my face, so I was good. I noticed the spots when I was just 25 years old, and now that I am 64 I am noticing that now I am getting my pigmentation back. I don t know why but all I know is that here I go again. Only these spots are coming back very quickly. is more common now than ever. I too was worried that my children would inherit this but so far so good. So don t give up and don t fight it. Just let it flow! Dale I believe that true success for those of us who live with Vitiligo does not come from the ways we attempt to conceal these patches of fear and shame, but through the acceptance of ourselves, holding no conditions of worth upon our person, patches or not. We all have had different walks but have felt the same fear and anxiety when confronted with our reality. From personal experience, there has been no peace greater than that I have felt when I learned to accept myself for what I have and engage my condition with bravery, equip myself with knowledge, and adopt a healthy lifestyle. It is a daily effort. Edward I have to ask, has anyone found a way to actually LOVE your Vitiligo? We need to love ourselves before others can love us. Our circumstances and situation don t hold us back from success- it s our MINDSET that does, so, any help would be greatly appreciated! Thanks! Joshua I guess all I can say is here we go again lol. So keep the faith and your head high. It
Since I discovered I had vitiligo, I changed things in my life, bits by bits, it s an ongoing process. I m letting go of everything I find toxic in my life, at least I try too. This includes habits and people. I think the vitiligo is like my subconscious mind speaking to me, telling me: some things in our life are very wrong, we must change them. I m afraid I m might be wrong it s difficult when I realise: this guy who is supposed to be a good friend is bringing me down, I have to let go of him. Anonymous There is no reason to believe that anyone else can dictate your worth. There is someone much more worthy than any person in this world who values you so much that He died for you. Others, but often times, we ourselves, will tell us that we are worthless or unlovable. This delusion isn t limited to those with vitiligo. It happens to even celebrities that others might view as having the perfect life. Don t believe that. Just know that this isn t the end of your story, and you most definitely are not home yet. I have lived with vitiligo for 30 years. I can t even imagine what my life was like before I found out that I had this disease. However, I also know that God has brought good even through this disease. I have learned to love others irrespective of what affirmation they can give me or what affection they can return, I have learned to have compassion for those who are struggling, and I have learned to trust in my God. He didn t take away the disease, but He surrounded me with love of my wife, my kids, and my friends and have given me the kind of contentment that I may not have found if I had the perfect skin with perfect appearances. Trust in Him. Know that the path to happiness that the world tells you is the only way is truly a lie. Happiness doesn t come from having the perfect skin. Happiness comes from you learning to truly love others. Dan I have lived with Vitiligo for 30 years. I have had girlfriends almost every point in my life. I survived with vitiligo through undergraduate and graduate school. Now, I am married with kids. If you really want to be loved, love others. Care about how others are feeling and doing instead of focusing on what others think of you. I am sure that you respond to people for more things than the color of their skin or their appearances. Take care of yourself (there is more to your health than skin color), love and care for others, and trust in God (not as a genie who will grant your wishes but as your creator who will give you the love and strength to thrive in love and joy no matter what the world may view as weakness). When you stop caring so much about what others think about you and how your come across to others, you will actually end up loving them more (because your love for them will not depend on them seeing you the way you want to be seen or giving you the kind of affirmation you think you need but in seeing them for who they are another beautiful creation of God) and getting more love in return (the kind of love that will survive losing some pigment). Dan
I am willing to keep my strategy and develop it, my life is more healthy, I take care of what I eat, I go to the gym regularly, and now I will follow gluten free diet.. I will use every single weapon I have and trust me I am winning.. please don t lose hope or strength it is everything it is all what I needed to achieve results that only few people could achieve.. the legend says there are some diseases that has no reason or a cure just because it doesn t need any it needs you to fight back..it needs you to make a better person out of youself he makes me feel pretty good and more confident. It helps a lot to have somebody to talk to, I really encourage everybody who has vitiligo to open up, with others who have vitiligo or just with a friend. Everything helps. SophieC I am here writing this and I am telling you I am fine.. and I am in control and I will keep building whatever walls it takes and make it harder and harder for vitiligo climb up or take the lead.. Trust me.. yes it can go away.. and yes It is going away Hisham Every day I was sad but then once I started to talk with my Aunt (I person who cares more about me than my own mum) she motivated me. And somehow the feeling of being sad went away :) And now I am starting a diet where I eat a lot of green things (like spinach and salats) and where I drink a lot of carrot juice. And I hope that this will help me. So thats my Vitiligo story. Jasmeen I feel kind of 50-50 about my vitiligo Sometimes I look at it and I feel helpless, confused Even if I read about it a lot, look at treatment and read other people stories, I wonder how I am going to deal with it But I now have an amazing boyfriend who thinks I am absolutely beautiful and sexy with it, he supports me in everything I do about it and
Tips On Vitiligo Edited by Keith Evans Email: keith@ihavevitiligo.com Online: www.ihavevitiligo.com